Autism and paracetamol/Tylenol

Hi everyone, I'm an autistic and I would welcome a safe space and bit of support to talk about the difficulties it's currently causing me and people like me that there's so much world discourse on autism being "caused" by X/Y/Z and the implication that that means we can get rid of it. I don't really want to hear that me being born autistic was a terrible tragedy for my parents and society, and nor do I really want to hear people triumphally saying they're going to avoid people like me being born in future. I presume others here can relate? I've no idea what my mother took during pregnancy other than a metric f*ck ton of dark chocolate and I don't really want anyone saying if she'd better choices I wouldn't exist.
I take that view that God made my autistic because this is how he likes me and that it's perfectly OK to God that I am autistic.
I hope this is an OK place to post this - I'm not looking for a row. I'm a UK civil servant so I'm also not looking to be (UK) political.

Comments

  • ArethosemyfeetArethosemyfeet Shipmate, Heaven Host
    I'm also autistic. I had terrible colic in infancy so I'm assuming in centuries past I would have been considered a changeling and/or possessed. Mostly I fear for those of our autistic brothers and sisters with limited capacity for self-advocacy (particularly children) who are likely to be subjected to cruelty and quack medicine because of this bullshit. I also worry about people who are pregnant trying to "tough out" pain and fever as a result of this crap being spread and risking their own health as well as that of their foetus. It's irresponsible, evil, and shame on anyone supporting it.
  • Gosh - I had terrible colic too - I must be possessed. That sure explains a lot, though it possible undercuts my arguments about God's intentions. (joke)
  • ArethosemyfeetArethosemyfeet Shipmate, Heaven Host
    edited September 23
    One fun story (probably orientalist myth) I read is that colic in babies was considered by some believers in reincarnation to be indicative of an additional soul entering the body and them fighting over it, with the stronger soul ultimately expelling the weaker one, and hence was sometimes seen somewhat positively.
  • LouiseLouise Epiphanies Host
    edited September 23
    I share your feelings in the OP- hearing all this harmful nonsense has been really hard. Basically we've become a target in culture war discourse.

    What causes autistic people is other autistic people having babies - but because of improvements in recognition, quacks have been able weaponise the increased visibility of autistic people in order to make ill- founded claims.

    I dont think this can be discussed entirely without politics - because political choices in scapegoating, pseudoscientific beliefs about wellness/ eugenics and being unwilling to fund public services, social security and accommodations in the workplace lie behind a lot of it - though I totally understand that you can't get involved in that.


    I noticed a while back that the anti-trans thought leaders were targeting autistic people because autism has a sizeable overlap with transness - trying to strip young autistic people of agency and because there's also a sizeable overlap with ADHD ( I am AuDHD) attacks ramping up on people with ADHD also include us.

    Then there's the turn to pseudoscience that came out of Andrew Wakefield who targeted autistic youngsters with his anti-MMR scam which helped fuel the now powerful anti-vax movement. This kind of science denial ran rampant over Covid and we're seeing more fruits of it now in far-right politicians thinking they can just stand up and spout nonsense and it will lead the headlines.


    'Impartial' news approaches often end up spreading this stuff on a wide scale by not properly condemning or ignoring it as outright crankery. And this means that time and space that could be spent helping people's understanding of autism in ways that could make our lives as autistic people better are instead devoured fire-fighting this crankery and that the crankery gets loose in society - meaning we can face increasedprejudice from our friends and families and in the workplace.

    It is unfortunately politicised - we're seeing the resurgence of eugenics in the far-right of the sort where the superior white supremacist nation had to be a 'healthy' one in contrast to the degenerate foe and degenerate enemies within and the undeserving genetic inferiors who needed to be expunged from the proper upstanding hardworking patriotic 'Volk'. (folk) - and that's why we're increasingly in this situation.


    I too feel worried about it and where it leads. We're not yet in the even worse position of our friends who are trans people and immigrants who need our solidarity but we're not in a good position and crap like this encourages- as you say - people to see you and I and others like us as something with a quick fix to be cured rather than as people who are different, equal and happy when given the support and accommodations we need.

    You're not alone! And it is worrying.

  • LouiseLouise Epiphanies Host
    And of course, grift is a big part of it too- seeking to profit from the quackery

    https://buttondown.com/TPGA/archive/the-big-autism-announcement-is-a-big-pile-of/
  • It's just all very depressing, isn't it? Makes one wish for a Second Coming to come and sort all this sh*t out.
  • CaissaCaissa Shipmate
    Our oldest son, who is on the spectrum, was apoplectic listing to POTUS on this topic yesterday.
  • Caissa wrote: »
    Our oldest son, who is on the spectrum, was apoplectic listing to POTUS on this topic yesterday.

    There's no apoplectic like an apoplectic autistic. We give good rage.
  • On several occasions, I've told Our Place's FatherInCharge that autism is NOT an illness, and that he should NOT include autistic people in his weekly list of the *sick and suffering* to be prayed for...

    He is a good and kindly man, but somewhat insensitive at times.

    I am myself on the spectrum, and rather resent being regarded as *sick*, or in some way mentally deficient.
  • On several occasions, I've told Our Place's FatherInCharge that autism is NOT an illness, and that he should NOT include autistic people in his weekly list of the *sick and suffering* to be prayed for...

    He is a good and kindly man, but somewhat insensitive at times.

    I am myself on the spectrum, and rather resent being regarded as *sick*, or in some way mentally deficient.

    Chuffing Nora I do hope you can get him to stop. It's only one or two steps from praying for people like me not to be autistic to praying for other people not to be gay (or whatever - choose your own stigmatised difference).
  • On several occasions, I've told Our Place's FatherInCharge that autism is NOT an illness, and that he should NOT include autistic people in his weekly list of the *sick and suffering* to be prayed for...
    “On several occasions”?! No one should need to be told that more than once. Perhaps you should add prayers for his failing memory to the weekly list of the *sick and suffering.*


  • I presume it wouldn't be Christian to pray "that Father Whatsit recovers from his current attack of being an utter pillock".
  • Nick TamenNick Tamen Shipmate
    edited September 23
    :lol:

  • DoublethinkDoublethink Admin, 8th Day Host
    Perhaps he could be trained to pray for autistic people to be relieved from the suffering inflicted upon them by the ignorance and dismissiveness of others ….
  • Perhaps he could be trained to pray for autistic people to be relieved from the suffering inflicted upon them by the ignorance and dismissiveness of others ….

    I think I've remonstrated with him on at least three occasions (in six years), but not recently. He continues to include the names of three children *with behavioural problems* on the list of sick and suffering in the weekly bulletin, but he is due to retire soon...

    The congregation is very small - 25 on a good day - so the bulletin is not read by all that many people. I include a modified version on the website, with first names of those to be prayed for, but without any other details.
  • Perhaps he could be trained to pray for autistic people to be relieved from the suffering inflicted upon them by the ignorance and dismissiveness of others ….

    Or to pray that people be released from tbe burden of being utter fucking twats?
  • He continues to include the names of three children *with behavioural problems* on the list of sick and suffering in the weekly bulletin, . . . .
    Words fail me.


  • You’re clearly far closer to the situation and people involved than me, and therefore in a far better place to judge actual motivations and meanings, but for what it’s worth if I read that bulletin I’d be mentally filing autistic people (a category to which I belong) under the “suffering” part but not ”sick”. And who would deny that those with autism suffer in numerous ways, both psychological and societal?
  • Another issue would be around consent surely? Have they asked for prayer and if so on what basis?
  • ArethosemyfeetArethosemyfeet Shipmate, Heaven Host
    You’re clearly far closer to the situation and people involved than me, and therefore in a far better place to judge actual motivations and meanings, but for what it’s worth if I read that bulletin I’d be mentally filing autistic people (a category to which I belong) under the “suffering” part but not ”sick”. And who would deny that those with autism suffer in numerous ways, both psychological and societal?

    I wouldn't say I suffer more than someone raising three kids alone, or trying to survive on out of work benefits, or any number of other situations routinely encountered that no-one would consider as needing constant inclusion on a prayer list.
  • You’re clearly far closer to the situation and people involved than me, and therefore in a far better place to judge actual motivations and meanings, but for what it’s worth if I read that bulletin I’d be mentally filing autistic people (a category to which I belong) under the “suffering” part but not ”sick”. And who would deny that those with autism suffer in numerous ways, both psychological and societal?
    Whereas I find use of the word “suffering” at all a bit odd. It seems unnecessarily something. Unnecessarily pious maybe?


  • AFAIK, the parents of the children concerned asked for prayer, which is fine, of course - but I still think that first names only, and no details, are all that's needed on the printed sheet. After all, it is to be supposed that God already knows the situation of the people involved.

    The term *sick and suffering* is, maybe, pious-speak. I don't use it on the website, preferring to say Please also remember before God (who knows the needs of each) those for whom our prayers have been asked...
  • The term *sick and suffering* is, maybe, pious-speak. I don't use it on the website, preferring to say Please also remember before God (who knows the needs of each) those for whom our prayers have been asked...
    Yes, that’s the direction I’d go.

  • Leorning CnihtLeorning Cniht Shipmate
    edited September 24
    Trump's claims about acetaminophen are obvious bollocks, but given that he's hired notorious vaccine crank RFK to head the health department, nobody expected him to say anything other than utter bollocks.

    75% of my kids have a diagnosis that includes autism. I have never pursued a diagnosis, but if you look at me and you look at my kids, and you look at my dad, the genetic link is pretty obvious. His dad died 40 years ago or so now, but he ticked a lot of the boxes, too.

    PS. And my brother, and his kids.
  • Alan29Alan29 Shipmate
    So basically its the mothers' fault for taking paracetemol if they have autistic children.
    He loves having someone to blame.
  • PomonaPomona Shipmate
    It's also just a straightforward attack on pregnant people since acetominaphen/paracetamol is one of the few painkillers you can take in pregnancy.

    As an aside, as someone who was also a colicky baby and who has mild dysphagia due to hEDS - I wonder if hypermobility/hEDS is a possible culprit of colic.
  • Farage has been on radio in the UK drawing a comparison with thalidomide and commenting that the science isn't settled:

    https://bsky.app/profile/lewisgoodall.com/post/3lzkvio2n2k2l
  • I want to be absolutely clear on something:

    People on the autistic spectrum are overrepresented among research scientists. Therefore, unequivocally, autism causes vaccines.

  • hEDS is a known cause of colic, yes--my son had it, badly enough to cause failure to thrive for a year.
  • Bishops FingerBishops Finger Shipmate
    edited September 24
    I want to be absolutely clear on something:

    People on the autistic spectrum are overrepresented among research scientists. Therefore, unequivocally, autism causes vaccines.

    :lol: or perhaps :flushed: or even :scream: ...
    hEDS is a known cause of colic, yes--my son had it, badly enough to cause failure to thrive for a year.

    AFAIK, I was not prone to colic when I was a child, but it's a long time ago. I did suffer quite badly from eczema, right into my 20s, and it has recurred (albeit very mildly) in recent years. I doubt if a common skin condition has anything to do with autism, though - or does it?

  • Alan Cresswell Alan Cresswell Admin, 8th Day Host
    I want to be absolutely clear on something:

    People on the autistic spectrum are overrepresented among research scientists. Therefore, unequivocally, autism causes vaccines.
    Or, as a meme doing the rounds has it "autism causes Tylenol".
  • hEDS is a known cause of colic, yes--my son had it, badly enough to cause failure to thrive for a year.

    AFAIK, I was not prone to colic when I was a child, but it's a long time ago. I did suffer quite badly from eczema, right into my 20s, and it has recurred (albeit very mildly) in recent years. I doubt if a common skin condition has anything to do with autism, though - or does it?

    [/quote]

    In case I confused you (or maybe you confused me?) I was talking about a connective tissue disorder that is body-wide, Ehlers-Danlos syndrome, hypermobility type (hEDS). It may or may not be linked to being neurologically out of the ordinary, but it is certainly linked to some cases of colic, because the connective tissue problem means that the valve between stomach and esophagus is weak, and doesn't shut properly and tightly, and so acid comes back up the esophagus--resulting in colic. Which really sucks.
  • Merry VoleMerry Vole Shipmate
    Alan29 wrote: »
    So basically its the mothers' fault for taking paracetemol if they have autistic children.
    He loves having someone to blame.

    This.
  • hEDS is a known cause of colic, yes--my son had it, badly enough to cause failure to thrive for a year.

    AFAIK, I was not prone to colic when I was a child, but it's a long time ago. I did suffer quite badly from eczema, right into my 20s, and it has recurred (albeit very mildly) in recent years. I doubt if a common skin condition has anything to do with autism, though - or does it?

    In case I confused you (or maybe you confused me?) I was talking about a connective tissue disorder that is body-wide, Ehlers-Danlos syndrome, hypermobility type (hEDS). It may or may not be linked to being neurologically out of the ordinary, but it is certainly linked to some cases of colic, because the connective tissue problem means that the valve between stomach and esophagus is weak, and doesn't shut properly and tightly, and so acid comes back up the esophagus--resulting in colic. Which really sucks.
    [/quote]

    Thanks for the cogent explanation @Lamb Chopped - it was indeed I who got confused...
  • RockyRogerRockyRoger Shipmate
    edited 9:53AM
    I want to be absolutely clear on something:

    People on the autistic spectrum are overrepresented among research scientists. Therefore, unequivocally, autism causes vaccines.

    This is an interesting observation. As a (retired) research scienist I recognise that I and many of my colleagues were, as they say, 'on the spectrum' and neurodiverse.
    For many years, I was happy in a gentle fundamentalist evan church and I wouldn't be surprised if 'people on the autistic spectrum' are also over-represented in these sorts of churches. It would explain their seeming lack of empthy with any other point of view.

    I moved to a much more, all embracing, church after CBT for an unrelated issue (I am a person who then stammered severly). The church, deeply suspicious of all psychology, was puzzled, though not unloving, by this.
  • DafydDafyd Hell Host
    edited 10:04AM
    Alan29 wrote: »
    He loves having someone to blame.
    As long as the someone's not him, or the problem isn't unseasonably hot weather.

  • HelenEvaHelenEva Shipmate
    RockyRoger wrote: »

    For many years, I was happy in a gentle fundamentalist evan church and I wouldn't be surprised if 'people on the autistic spectrum' are also over-represented in these sorts of churches. It would explain their seeming lack of empthy with any other point of view.

    I moved to a much more, all embracing, church after CBT for an unrelated issue (I am a person who then stammered severly). The church, deeply suspicious of all psychology, was puzzled, though not unloving, by this.

    I do think fundamentalism can be tempting to an autistic brain. It's the clarity and rules and things. I can feel the autistic temptation to something more fundamentalist than my current Anglican home which is where intellectually and morally I feel I belong.
  • ArethosemyfeetArethosemyfeet Shipmate, Heaven Host
    HelenEva wrote: »
    RockyRoger wrote: »

    For many years, I was happy in a gentle fundamentalist evan church and I wouldn't be surprised if 'people on the autistic spectrum' are also over-represented in these sorts of churches. It would explain their seeming lack of empthy with any other point of view.

    I moved to a much more, all embracing, church after CBT for an unrelated issue (I am a person who then stammered severly). The church, deeply suspicious of all psychology, was puzzled, though not unloving, by this.

    I do think fundamentalism can be tempting to an autistic brain. It's the clarity and rules and things. I can feel the autistic temptation to something more fundamentalist than my current Anglican home which is where intellectually and morally I feel I belong.

    Affirming Catholicism style Anglicanism allows me to scratch my "rules" itch without the, frankly, evils of fundamentalism. Let me fuss about bowing in the right place or when to make the sign of the cross and keep me away from trying to police other people's personal lives.
  • ThunderBunkThunderBunk Shipmate
    If my NeurodivergenceDAR is functioning well, the Jesus Army documentaries are chilling in this respect. The sense of entitlement to enforce the rules, just because they are The Rules so there, is giving me serious pause.
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