I was supposed to go to the Germ Farm the other day for a consultation with the radiation oncologist concerning my brain freckle. I had the bright idea of calling to see if we could do it via videoconferencing or plain old telephone; they said yes to the latter, but that they'd have to charge me/my insurance for a regular office visit. (I ended up hearing that routine a total of three times.) I stayed home, and had the added bonuses of not needing to have my aide load the wheelchair into the car or search for a parking space.
Thank you for asking, @cgichard. It's a bit better, but it still strikes without warning. My oncologist, whom I saw today, is prescribing something stronger.
(My Junior Child took me to today's appointment. My oncologist made a point of telling her how, when I was still in hospital in mid-February, he told me that I was unlikely to live into late April, and told me, "It's possible we could have a conversation on May 1, but I'd be surprised." I called him Friday morning, reminded him of that comment, and said, "Happy May Day!" He laughed long and heartily then, and again as he related the tale. I think he liked that I insisted on continuing treatment, that I lived long enough to call him on the day, and that I followed up with it - and he wanted her to know it. Bless him.)
Stronger medication is good news, and I hope it works without any untoward side-effects. How good it must feel to surprise your oncologist!
May that teach him to make unwarranted assumptions.
I'm sure I can speak for all on the Ship in joining him in wishing you not only Happy May, but Happy June and all the rest of 2020 and for as long as you choose to grace us with your presence.
My mother is now emerging into a world after chemotherapy. She faces another operation to remove things that need removing (I haven't quite got to the bottom yet of what needs removing, since nothing cancerous has been found by scans but there we are). This should be in about five weeks.
For the moment, I think she is looking forward to recovering an appetite for something other than porridge and mashed carrot, and to not being poisoned weekly.
When I hop on board the ship and see a lot of unread posts in the cancer thread my heart sinks, and I wonder who has had bad news. Delighted that this is not the case this time. Praying on for all our gallant but cancerous crew.
When I hop on board the ship and see a lot of unread posts in the cancer thread my heart sinks, and I wonder who has had bad news. Delighted that this is not the case this time. Praying on for all our gallant but cancerous crew.
I'm exactly the same! It's always a peasure to read that Ross has kicked the tin cat further down the road, or that our other friends living with this Bastard Cancer are still getting up and going. I pray for you all whenever I remember to pray.
Oops! Sorry.
The "t" and the "n" are nowhere near each other on my AZERTY keyboard, so I really don't know how that happened. Freudian slip, perhaps?! (But I love cats)
When I hop on board the ship and see a lot of unread posts in the cancer thread my heart sinks, and I wonder who has had bad news. Delighted that this is not the case this time. Praying on for all our gallant but cancerous crew.
When I hop on board the ship and see a lot of unread posts in the cancer thread my heart sinks, and I wonder who has had bad news. Delighted that this is not the case this time. Praying on for all our gallant but cancerous crew.
You put it very well, I feel this too. #teamRossweisse
Hooray and hallelujah for all the good news! Dormouse, I admit I had a hearty laugh over the tin cat typo. Thank you for that image (with my apologies to @Rossweisse's feline ministers).
@ThunderBunk, I hope things go well for your mother now that she can move on from porridge!
<votive> Prayers continuing for @ThunderBunk's mother.
Thank you all! When I had my weigh-in a fortnight ago, I was up more than five pounds, but we feared (given the return of my lymphedema) that it was just fluid. As of Monday, I definitely weigh more than 100 pounds, which should mean that I'm out of the danger zone in that respect, at least. Now I just need to keep eating. (What a great assignment!)
All Easter Week at Casa Santa Marta the assembled rag-tag bunch of randoms sang with +++Francis "This is the day which the LORD has made. Let us rejoice and be glad in it"
(In Italiano and not the that tune, I hasten to add)
I had an unusually horrible day yesterday with pain and fatigue ... I must keep in mind that today is A New Day. What was, was was ...
Prayers to strengthen that intention ... thanks in advance
I'd been staying away from this topic for a while, and like Cathscats and everyone else, got a huge boost from Rossweisse's latest when I dropped in just now. Now I'm dealing with a mental picture of the tin cat chasing the orneries and making a hell of a racket while Ross is trying to enjoy a quiet glass or two of red wine. I think I'll have one too.
I'd been staying away from this topic for a while, and like Cathscats and everyone else, got a huge boost from Rossweisse's latest when I dropped in just now. Now I'm dealing with a mental picture of the tin cat chasing the orneries and making a hell of a racket while Ross is trying to enjoy a quiet glass or two of red wine. I think I'll have one too.
May all of us know the peace of God and support of community in the good, the bad and the just plain ordinary.
For those posting and those not posting, for friends past and present, online and in real life.
For peace.
You are enough.
You matter.
I've been having serious pains in my left leg for a couple of weeks; the causes of said pain (neurological? muscular?) are not clear. My oncologist ordered up a raft of X-rays, which I had on Thursday.
Today (Friday, by my standards), I got the word that the bones seem okay - but the metastasis in the hip seems to be larger. I'm to have more X-rays taken; if the cancer has indeed progressed, I'll be kicked out of the study that is currently saving my life. (This is starting to sound familiar.) Prayers that things have not got to the stage where I shall be booted would be greatly appreciated. For all its present shortcomings (wheelchair, 24-hour care, a certain amount of discomfort), I am still enjoying my life.
Comments
Best wishes to all (Galilit)
I was supposed to go to the Germ Farm the other day for a consultation with the radiation oncologist concerning my brain freckle. I had the bright idea of calling to see if we could do it via videoconferencing or plain old telephone; they said yes to the latter, but that they'd have to charge me/my insurance for a regular office visit. (I ended up hearing that routine a total of three times.) I stayed home, and had the added bonuses of not needing to have my aide load the wheelchair into the car or search for a parking space.
Galilit, you do what seems best to you!
(My Junior Child took me to today's appointment. My oncologist made a point of telling her how, when I was still in hospital in mid-February, he told me that I was unlikely to live into late April, and told me, "It's possible we could have a conversation on May 1, but I'd be surprised." I called him Friday morning, reminded him of that comment, and said, "Happy May Day!" He laughed long and heartily then, and again as he related the tale. I think he liked that I insisted on continuing treatment, that I lived long enough to call him on the day, and that I followed up with it - and he wanted her to know it. Bless him.)
May that teach him to make unwarranted assumptions.
I'm sure I can speak for all on the Ship in joining him in wishing you not only Happy May, but Happy June and all the rest of 2020 and for as long as you choose to grace us with your presence.
My mother is now emerging into a world after chemotherapy. She faces another operation to remove things that need removing (I haven't quite got to the bottom yet of what needs removing, since nothing cancerous has been found by scans but there we are). This should be in about five weeks.
For the moment, I think she is looking forward to recovering an appetite for something other than porridge and mashed carrot, and to not being poisoned weekly.
I'm exactly the same! It's always a peasure to read that Ross has kicked the tin cat further down the road, or that our other friends living with this Bastard Cancer are still getting up and going. I pray for you all whenever I remember to pray.
The "t" and the "n" are nowhere near each other on my AZERTY keyboard, so I really don't know how that happened. Freudian slip, perhaps?! (But I love cats)
Ross, I really like your oncologist!
You put it very well, I feel this too. #teamRossweisse
@ThunderBunk, I hope things go well for your mother now that she can move on from porridge!
Thank you all! When I had my weigh-in a fortnight ago, I was up more than five pounds, but we feared (given the return of my lymphedema) that it was just fluid. As of Monday, I definitely weigh more than 100 pounds, which should mean that I'm out of the danger zone in that respect, at least. Now I just need to keep eating. (What a great assignment!)
I daresay all suggestions as to suitable menus will be acceptable...
As long as WINE is required as an accompaniment.
(In Italiano and not the that tune, I hasten to add)
I had an unusually horrible day yesterday with pain and fatigue ... I must keep in mind that today is A New Day. What was, was was ...
Prayers to strengthen that intention ... thanks in advance
Cheers!
For those posting and those not posting, for friends past and present, online and in real life.
For peace.
You are enough.
You matter.
Today (Friday, by my standards), I got the word that the bones seem okay - but the metastasis in the hip seems to be larger. I'm to have more X-rays taken; if the cancer has indeed progressed, I'll be kicked out of the study that is currently saving my life. (This is starting to sound familiar.) Prayers that things have not got to the stage where I shall be booted would be greatly appreciated. For all its present shortcomings (wheelchair, 24-hour care, a certain amount of discomfort), I am still enjoying my life.